Sarcoid Networking Association

Disclaimer: Sarcoid Networking Association does not promote, endorse or encourage participation in any specific organization. Details are provided for information only and is subject to change without notice. Every effort is made to ensure that the details are as current as possible.

Sarcoidosis Support Groups:

United States
- Online: SarcoidBuddies Chat and Online Support Group
- National Organizations
  - National Sarcoidosis Society, Inc.
    Glenda Fulton (sarcoidosis@hotmail.com )
    4747 Martin Luther King Drive, Suite 512
    Chicago, IL 60615
    773-536-7754
    Providence Cook County Hospital
    500 East 51 Street
    Sarcoidosis Support Group Meetings - Jan, Feb, March, April, MAY, & June 2004: every second Saturday, 12:00 to 2:00 pm, and 3:00 pm to 5:00 pm. For location nearest you, PLEASE call 773/536-7754.
  - National Sarcoidosis Resource Center (http://www.nsrc-global.net)
    Sarcoidosis Support Resource Central NJ
    PO Box 1593
    Piscataway, NJ 08855-1593
    Contact: Sandra Conroy
    B-1 Brier Hill Court
    East Brunswick, NJ 08816
    (732) 699-0733
  - Sarcoid Networking Association (this website)
    5302 South Sheridan Avenue
    Tacoma, WA 98408-3535
    Phone: 253-826-7737
    Email: sarcoidinformation@sarcoidosisnetwork.org
  - Sarcoidosis Health and Wellness Support Center
    2225 Foster Street
    Evanston, IL 60201-3353
    Phone: (847) 731-3110
    Email: BHarris354@aol.com
  - Sarcoidosis Network Foundation
    11428 East Artesia Blvd
    Artesia CA 90201
    (562) 809 – 8500
  - Sarcoidosis Research Institute
    Paula Polite, President
    Memphis, TN
    (901) 774-5511
    www.netten.net/~soskelnet
  - The Sarcoidosis Awareness Network
    Linda Lanier, President
    1031 Farrar Avenue
    Cheltenham MD 20623
    301-372-2885
    email: tsan4w@aol.com
- State Organizations
  - California
    - REACH - Sarcoidosis Support
      Ruth Jacobs
      10843 Kenney Street
      Norwalk, CA 90650
      (714) 739-4023
  - Colorado
    - Denver Sarcoidosis Awareness Support Group
      Shirley R. Holley, Founder & President
      Meetings bi-monthly on the third Saturday 12:00 PM to 1:30 PM
      5455 Malta Street
      Denver, CO 80249
      Contact: Shirley at 303.375.9376 or Leonard at 303.371.0446
      Email: supportgroups@denversarcoidosisawareness.org
      Website: www.denversarcoidosisawareness.org
  - Florida
    - South West Florida Sarcoidosis Support
      
      c/o Ms. Dale C. Thurlow
      
      121 West Lake Drive
      
      Lehigh Acres, FL 33936-6921
      
      (239) 368-0102
      
      Email: THEDLINE@aol.com
  - Georgia
    - Sarcoidosis Support Group
      Cindy Balkstra, RN
      St. Joseph's/Chandler Health System
      5353 Reynolds Street
      Savannah, GA 31405
      (912) 819-8032
      Email: balkstrac@sjchs.org
      Meetings held last Thursday of March, June, Sept, Dec.
      
      Noon to 1 PM; second floor, Heart and Lung Bldg
  - Illinois
    - National Sarcoidosis Society, Inc.
      Glenda Fulton (sarcoidosis@hotmail.com )
      4747 Martin Luther King Drive, Suite 512
      Chicago, IL 60615
      773-536-7754
      Providence Cook County Hospital
      500 East 51 Street
      Sarcoidosis Support Group Meetings - Jan, Feb, March, April, MAY, & June 2004: every second Saturday, 12:00 to 2:00 pm, and 3:00 pm to 5:00 pm. For location nearest you, PLEASE call 773/536-7754.
    - Holy Cross Hospital
      Support Meetings - Second Saturday Each Month
      2701 West 68 Street
      Chicago, IL
    - Chicago South Side Support
      Meets every 2nd Saturday, Noon – 3 PM
      Pioneer Village
      340 E. 38th Street
      Chicago IL 60653
      Contact: Doris Peterson at (312) 218-9866
    - Let’s Breathe Sarcoidosis Support Group
      Brenda Harris
      2225 Foster Street
      Evanston, IL 60201-3353
      (847) 731-3110
      Email: BHarris354@aol.com
  - Indiana
    - Central Indiana Sarcoidosis Support Group
      Meets 2nd Saturday every other month from 2 to 4 PM
      Kindred Hospital
      1700 West 10th Street
      Indianapolis IN 46202
      Contact Person: Robbie Darden
      317-335-2981
      Email: indysarcoid@aol.com
  - Kentucky
    - Sarcoidosis Support Group
      Baptist Hospital East
      4000 Kresge Way
      Louisville, KY 40207
      Contact: Ann Sizemore, RRT
      Respiratory Care Dept
      502-897-8885
      Meetings held quarterly in February, May, August, November
  - Louisiana
    - New Orleans area
      Meetings every other month
      Call Lori at 504.454.4871
  - Maryland
    - The Sarcoidosis Awareness Network
      Linda Lanier, President
      1031 Farrar Avenue
      Cheltenham MD 20623
      301-372-2885
      email: tsan4w@aol.com
    - Sarcoidosis Support Group Maryland
      PO Box 1534
      Bowie, MD 20717
      Contact: Dorothea Howard
      email: info@dorotheamcguirefoundation.org
      443-762-4282
  - Massachusetts
    - NONE
  - Michigan
    - Sarcoidosis Awareness Foundation
      14540 Whitcomb St.
      Detroit, MI 48227
      Contact: Janie L. Chuney
      Email: SarcoidAwareness@aol.com
    - Sarcoidosis Resource Support Group
      PO Box 3231
      Highland Park, MI 48203
      Contact: Pam Mullins 248-569-8091 or
      Dot Lawrence 315-575-4852
      Email: pmullins@detroitsworkplace.org
    - Sarcoidosis Support - Beaumont
      meets Second Saturday of each month, 1 PM
      William Beaumont Hospital
      300 W. 13 Mile Road
      Royal Oak, MI
      Contact Victoria Rice
      Phone 248-545-0320
      Email: jaynie04@aol.com
  - Minnesota
    - Minneapolis/St. Paul Chapter
      National Sarcoidosis Society, Inc.
      2233 University Ave S. #426
      St. Paul, MN 55114
      651-642-0811
  - New Jersey
    - National Sarcoidosis Resource Center (http://www.nsrc-global.net)
      Sarcoidosis Support Resource Central NJ
      PO Box 1593
      Piscataway, NJ 08855-1593
      Contact: Sandra Conroy
      B-1 Brier Hill Court
      East Brunswick, NJ 08816
      (732) 699-0733
    - Jersey Shore Sarcoidosis Support
      Meets every 3rd Thursday of the Month at Jersey Shore Medical Center. Call Tracy for details: 732-660-0560
  - New York
    - Long Island Sarcoidosis Support (Since 1994)
      Meeting date and time rotate, so call 516-483-2666
      Bob Schoenfeld, Facilitator
      1989 North Jerusalem Road
      East Meadow, NY 11554
  - North Carolina
    - Sarcoidosis Support Group
      Uldridge Galloway
      1021 Fitzgerald Drive
      Wilmington, NC 28405
      (910) 395-0154
    - UNC Sarcoidosis Support Group
      UNC Div/Pulmonary Medicine
      130 Mason Farm Rd CB#7020
      Chapel Hill NC 27599-4512
      (919) 966-2531 or fax (919) 966-7013
      For meetings dates and location contact Julie Montenegro RN
      email: juliem@med.unc.edu
  - Ohio
    - Euclid Ohio
      Euclid Sarcoidosis Support
      Meetings Quarterly
      Contact: Ann Coughlin 216-692-7515
    - Cleveland OH
      Sarcoidosis Center of Excellence (SCOE) Support Group
      Meetings 7 times a year
      Contact: Nancy Ivansek
      Hotline 216-445-8747
      Toll Free 866-783-3679
    - Youngstown OH
      Youngstown Support Group
      Meetings Monthly
      Contact: Pat Couchenour 336-549-2712
      Email: pattws@aol.com
    - Columbus OH
      Columbus Support Group
      Meetings Monthly
      Contact: Theresa (Penny) LaMons 614-231-8357
      Email: lamons2@aol.com
    - Huber Heights
      Dayton Support Group
      Meetings Monthly
      Contact: Rita Waymire 936-667-0062
    - Central Ohio Sarcoidosis Support Group
      Vikki Goldstein
      4093 Cleveland Ave
      Columbus, OH 43224
      (614) 645-2240
      Email: onecincyfan@hotmail.com
    - Sarcoidosis Support Group
      Dayton Ohio Snowflakes
      Rita Waymier
      8910 Autumn Gates
      Huber Heights, OH 45424
      (513) 667-0062
    - Cincinnati Area:
      Judy Kay (812) 637-0915
  - Oregon (see schedule on Events Page)
    - Sarcoidosis Support Group - Mid Oregon
      Meets every second Saturday at 11AM
      Albany General Hospital, 4th Floor Conference Room 1
      Albany, OR
      Contact: Kristi Anderson
      Phone: 541-905-2092
      Email: aghsarc@yahoo.com
    - Sarcoidosis Support Group - NW Oregon, SW Washington
      Meets every third Saturday at at Providence Medical Center;
      4805 NE Glisan, Portland, OR, 97213.
      12:30 PM in Room HCC6.
      Contact: Kristi Anderson
      Phone: 541-905-2092
      Email: aghsarc@yahoo.com
  - Pennsylvania
    - Sarcoidosis Self-Help
      Della Emmanuel
      2112 Highland Ave
      New Castle, PA 16105
  - South Carolina
    - Sarcoidosis of the Midlands of South Carolina
      Contact phone: (803) 779-5523
  - Tennessee
    - Thursday, April 17th, 2008
      Speaker: Dr. Wonder Drake from Vanderbilt University
      East Tennessee Sarcoidosis Support Group Sarcoidosis patients, their families and loved ones as well as interested professionals are encouraged to attend our meeting Thursday, April 17th, 2008 from 7pm-8:30pm at Parkwest Medical Center (9352 Park West Blvd, Knoxville, TN 37923) in The Grubb Meeting Room (located beside the cafeteria). Arrive early for opportunities to meet and talk with others. Speaker: Dr. Wonder Drake from Vanderbilt University, "An Update on Current Sarcoidosis Research". For email updates and meeting reminders, send an email to: etsarcoidosis@gmail.com. Additional information: 865-671-0449
    - East Tennessee Sarcoidosis Support Group
      Contact: Cathy Trumbull
      865-671-0449
      Email: etsarcoidosis@gmail.com
    - Middle Tennessee Sarcoidosis Support Group
      Beck Robertson
      PO Box 1342
      Cookesville, TN 38503
      (931) 528-7826
    - Sarcoidosis Research Institute
      Paula Polite, President
      3475 Central Avenue
      Memphis, TN 38111-4407
      (901) 774-5511
      www.netten.net/~soskelnet
    - West Tennessee Sarcoidosis Support
      Huntingdon TN
      Meets Quarterly - For place and dates,
      Contact: Patricia Coleman 731-986-9832
  - Texas
    - Sarcoidosis Support Group
      El Paso, TX
      Contact: Kathrine Wilson - 915-857-5285
    - Houston TX
      Sarcoidosis Awareness on line support group
      
      Houston Texas Sarcoidosis Support Group
      West Houston Medical Center
      12121 Richmond Ave, Rm 201
      Houston, Tx 77072
      1-800-846-5158
      email: sarcoidosis@jsof.org
      website: www.jsof.org
  - Virginia
    - Sarcoidosis Support Group
      Beverly Moses
      704 Woodnote Land
      Newport News, VA 23608
      (804) 988-3065
  - Washington (see schedule on Events Page)
    - Sarcoidosis Support Group - Pierce County
      Meetings held Second Saturday of each month
      Location rotates between Puyallup and Tacoma
      Contact Lynn Short at 253-826-7737
      Email: sarcoidinformation@sarcoidosisnetwork.org
    - Sarcoidosis Networking Association
      Lynn Short, Director
      5302 South Sheridan Avenue
      Tacoma, WA 98408-3535
      253-826-7737
      Email: sarcoidinformation@sarcoidosisnetwork.org
      Web Site: www.sarcoidosisnetwork.org
England
- Sarcoidosis and Interstitial Lung Association
  email to info@sila.org
- UK Sarcoidosis Information & Support Group
Japan
- Japanese Patient Association (Note: site is in Japanese)
  You will be able to display the Japanese characters only if you download the software from Microsoft Windows update website. It lists Dr. Sharma's 108 Q & A section. The e-mail address of the webmaster is sato@sato.email.ne.jp .
Germany
- German Sarcoidosis Association (Note: site is in German)
  The Deutsche Sarkoidose-Vereinigung (translated as German Sarcoidosis Association) is an association of patients and their relatives. The Association addresses sarcoidosis and other granulomatous disorders.
  The association is non-governmental and tax-exempt because of its charity status. The association was founded in 1987 and has at the moment about 3,400 members. Their membership fees contribute significantly to the activities of the association to provide information on sarcoidosis and to support sarcoidosis research.

The SARCOID NETWORKING ASSOCIATION was founded in 1992 to educate individuals, provide information and heighten public awareness about sarcoidosis.

For detailed information about our 501(c)(3) status, go to www.guidestar.org.

Sarcoid Networking Association

Sarcoidosis Support Groups:

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