Sarcoid Networking Association

Research Trials

There are 18 trials currently recruiting Sarcoidosis patients. As much information from as many patients with Sarcoidosis will provide researchers with data that can be correlated enhancing the understanding of the disease. Maybe 2009 will be the year a cause for Sarcoidosis is announced.

Go to http://www.nhlbi.nih.gov/health/dci/Diseases/sarc/sar_links.html for detailed information about these clinical trials.

Sarcoidosis Information Links:

• Sarcoidosis Registry
• National Heart, Lung, and Blood, Institute (NHLBI) fact sheet on Sarcoidosis
• Public Service Announcement - click for more
• Pulmonary Sarcoidosis?  Clinical Study: 99-H-0057, Treatment of Pulmonary Sarcoidosis with Pentoxifylline
  Call the National Institute of Health (NIH) at 1-800-411-1222 (TTY: 1-866-411-1010), for a study comparing a medication called pentoxifylline and a placebo (sugar pill).  Must be on standard steroid treatment.  NIH is part of Dept. of Health & Human Services. For more information, contact:
  Warren G. Magnuson Clinical Center
  National Institutes of Health
  10 Cloister Court, Building 61
  Bethesda, MD  20892-4754
  Toll Free Patient Referral Line 1-(800)-411-1222
  TTY:  1-(866)-411-1010
  Office Hours:  Monday-Friday EST 8AM-4:30PM
  Internet:  http://www.cc.nih.gov.ccc.prpl
• American College of Chest Physicians - CHEST NET
• The Sarcoid Center
• National Jewish Medical & Research Center
• Sarcoidosis - an online medical reference
• Dr. Om. P. Sharma MD
• National Heart Lung and Blood Institute
• Sarcoidosis Online Sites

• Me & Sarcoidosis - A Lifetime Partner, by Gilbert Barr Jr., M.D.

• Dermatology Image Atlas (from Johns Hopkins University)
• Sarcoidosis Education Events & Sarcoidosis Awareness Activities
• Support Groups
• Lighthouse International Develops Free, Innovative Web Browser Software For People Who Are Visually Impaired
• As a Rare Disease Day Partner, we join hundreds of other patient organizations, government agencies, medical societies and companies in focusing attention on rare diseases.
• Sarcomatoid Mesothelioma

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The SARCOID NETWORKING ASSOCIATION was founded in 1992 to educate individuals, provide information and heighten public awareness about sarcoidosis.

For detailed information about our 501(c)(3) status, go to www.guidestar.org.

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