The SARCOID NETWORKING ASSOCIATION was founded in 1992 to educate individuals, provide information and heighten public awareness about Sarcoidosis.
SNA has a new Executive Director
For over 20 years, the Sarcoid Networking Association has continued to provide support and information to sufferers of Sarcoidosis and worked with other organizations to promote awareness and research for this disease. In that time, we have gone through many changes while still providing these services. As you may know, Dolores O’Leary, the founder of SNA, retired in 2006 and Lynn Short, previous President of the Board, took over as Executive Director. At that time, Kristi Anderson became President of the Board. Now, effective September 2012, Lynn has stepped down for a much deserved retirement and Kristi is now the new Executive Director. Lynn will continue for some time as an advisor.
Kristi has been on the Board since 1997, and carries the passion for this organization that comes from someone who has the disease and has talked to hundreds of people and heard their stories. She has also represented SNA in Washington D.C. and at the National Institutes of Health as well as facilitating two support groups in Oregon and as Director and founder of the Sarcoid Registry.
With the change in directorship comes another change. The office is now moved to Molalla, Oregon. The old address will continue to forward mail to the new address but we are contacting as many members and partners as possible to announce the new address.
We will also be changing our phone number. The new phone number is: 541-905-2092. (The old phone number will be discontinued on April 30, 2013. )
SNA appreciates your patience with the changes that are coming. We will continue to keep this website updated and contact members through phone calls, mailings, and newsletters along with the website information. We look forward to many more years of service. Thank you for your continued support.
The new address:
Sarcoid Networking Association
The new phone number is: 541-905-2092
Sarcoidosis Awareness Month Event:
Gathering and Information Sharing
Saturday, April 20, 2013 12:00-4:00
Cascade Gateway Park
Take I-5 exit 253; turn west, turn left on Turner Rd. Take left into park. We will be in the covered area. Watch for the banner. Bring your own food, chairs, etc.
Sarcoidosis Registry: www.snaregistry.org
Note from Sarcoidosis Registry: "We are pleased to announce that the Sarcoidosis Registry is now online. The website address is www.snaregistry.org. We are already receiving exciting responses to the site and we look forward to more. We are proud to have Dr. Om Sharma, Dr. Ganesh Raghu, and Dr. Gopal Allada on our Scientific Advisory Board. Their involvement adds knowledge and understanding to this project. Please contact Kristi Anderson for questions concerning the registry at email@example.com or 541-905-2092. We look forward to your questions and responses to this endeavor. If we work together, we can make a difference."
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NEWS: Public Service Announcement & Research Studies: There are 18 trials currently recruiting Sarcoidosis patients ... learn more
Check out the latest events going on across the country ... details here
Disclaimer: Sarcoid Networking Association does not promote, endorse or encourage participation in any specific organization. Details are provided for information only and is subject to change without notice. Every effort is made to ensure that the details are as current as possible.
For detailed information about our 501(c)(3) status, go to www.guidestar.org.